Upcoming events 

THANK YOU TO ALL WHO MADE IT TO THE 26TH YEAR OF

 NECPAD FAMILY EVENT -APPLEFEST AT HONEYPOT HILL!!

 

TOUCHSTONE CRYSTAL FUNDRAISER AVAILABLE ON-LINE AND AT THE EVENT

                                                                          HOMOLOGY UPDATE

Homology Medicines Announces Presentation of Positive Data from the Dose-Escalation Phase of the pheNIX Gene Therapy Trial for Adults with PKU.  Please click below for more information on Homology's plans to move to the dose expansion phase of the trial, which we plan to begin in early 2021.

 

 

                                                                         YOUR HELP IS NEEDED NOW!!!!!

Time is running out  to gain the support needed to pass the MEDICAL NUTRITION EQUITY ACT.  Please contact your Legislator today and request support for the MNEA H.R. 2501 (House of Representatives) and S.3657 (Senate).  Please see the Senate Outreach Competition NPKUA is running for the month of September, you could win a $50 Amazon Gift Card!  Click Here

                                                          LEGISLATOR LOCATOR                     MNEA INFO

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Welcome to the New England Connection for PKU and Allied Disorders (NECPAD)

NECPAD is a non-profit organization that benefits and supports individuals with Phenylketonuria (PKU) and other related disorders and their families. We hope you will find the information you are looking for. Please join our mailing list to stay up-to-date on activities, information and research. Contact us with any questions or suggestions.

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UPCOMING EVENTS

Taste of Providence - T/B/D

Fast Feet for Phreedom 5K CANCELLED

Kimball Farms T/B/D

Looking for more information? Have an idea or suggestion? Need a question answered? Contact the president of NECPAD, Denise Queally at 781-706-9219, send a letter to the following address or email NECPAD using the email NECPADtreasurer@gmail.com.

Mailing address:
New England Connection for PKU and Allied Disorders
27 Murray Circle

Raynham, MA 02767

***NOTE: NECPAD strives to remain neutral when communicating information relevant to our PKU/AD community. NECPAD wants to ensure our community is kept well informed of news related to PKU/AD but in no way does NECPAD endorse any clinical trial, treatment, product, industry partner, or event.

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