· UCD In Common - this is an online, interactive resource consisting of a website and Facebook page where people living with UCDs, and their family members can learn about UCDs, share their common experiences, and provide ideas and resources to help others.
· NORD UCD - Patient Assistance Programs – NORD is currently offering patient assistance programs for the UCD community – if you scroll down to Urea Cycle Disorders and click on the plus sign, you will see the different programs listed. Below are some examples:
o Medical Foods & Supplements Financial Assistance Program
o Emergency Relief Fund – this is especially important now, given the devastation caused by Hurricane Harvey in Houston, TX
· Global Genes – this is a wonderful organization which supports the entire rare disease community - they have many resources on their website, including webinars, toolkits, podcasts, etc.
HCU Network of America: