Most restaurants will accommodate special dietary needs, but many will not prepare food that you have brought into the restaurant, due to company policies. It is helpful to call ahead to see if they can prepare a low-protein meal.
Get Support Need Help or Encouragement? We’re here to support you!
There are often questions, concerns, frustrations and fears when dealing with a metabolic disorder. Because the New England Connection’s disorders are rare, support may be difficult to find. Please let us help! We can put you in touch with others who have had similar experiences, so that you can talk or meet one-on-one. Please remember, you are not alone in this condition.
You can speak with:
A medical professional, such as a doctor, nutritionist, psychologist, or social worker
An individual afflicted with the same metabolic condition, within a certain age group (examples: PKU adult, HCU teenager).
A family member living with someone who has a metabolic disorder (examples: parent, guardian, grandparent, brother, sister). For more information on support for parents, see our parent-to-parent program.Canavan Grant Funds
Follow these links for more information on the funds available for Massachusetts patients:
Canavan Grant Funds:
Nord Financial Assistance Program, NORD COVID-19 Critical Relief Program:
For more information click here