Kids eating apples

Did You Know?

Local PKU Clinics

The Children's Hospital

Coverage Assistance

National Organization for Rare Disorders

PKU Information >

Links and Resources:

Professional Organizations

New England Consortium of Metabolic Programs

New England Regional Genetics Group

PKU Organizations

National PKU Alliance

Mid-Atlantic Connection for PKU and Allied Disorders

Tennessee PKU Foundation

PKU Organization of Illinois

Children’s PKU Network

BioMarin Pharmaceuticals PKU Web Portal

National PKU News

Patient Power

Food and Products

NECPAD's list of Medications that have Phenylalanine

Applied Nutrition

Cambrooke Foods & DietWell

Dietary Specialties

Ener-G Foods

Gluten Free Pantry

Honeyville Grain


Milupa-North America

Nutricia North America (formerly SHS NA)

Qs Cookies and Culinary Creations

Ross Metabolic Formula System

SHS North America

Specialty Diets, Inc

Taste Connections

Tastee Apple Fiber

The Dietary Shoppe, Inc.


Uncle Henry’s Pretzels

Vance’s Foods, Inc.

Vitaflo Ltd.