Kids eating apples

Did You Know?

Local PKU Clinics

The Children's Hospital
childrenshospital.org

Coverage Assistance

National Organization for Rare Disorders
www.rarediseases.com/

PKU Information >

Links and Resources:

Professional Organizations

New England Consortium of Metabolic Programs
newenglandconsortium.org

New England Regional Genetics Group
www.nergg.org

PKU Organizations

National PKU Alliance
www.npkua.org

Mid-Atlantic Connection for PKU and Allied Disorders
www.macpad.org

Tennessee PKU Foundation
www.tennesseepku.org

PKU Organization of Illinois
www.pkuil.org

Children’s PKU Network
www.pkunetwork.org

BioMarin Pharmaceuticals PKU Web Portal
www.pku.com

National PKU News
www.pkunews.org

Patient Power

www.patientpower.info

Food and Products

NECPAD's list of Medications that have Phenylalanine

www.necpad.org/pheinmed.php

Applied Nutrition
www.medicalfood.com

Cambrooke Foods & DietWell
www.Cambrookefoods.com

Dietary Specialties
www.dietspec.com

Ener-G Foods
www.ener-g.com

Gluten Free Pantry
www.glutenfree.com

Honeyville Grain
www.honeyvillegrain.com

Med-Diet
www.med-diet.com

Milupa-North America

Nutricia North America (formerly SHS NA)
www.myspecialdiet.com

Qs Cookies and Culinary Creations
www.QsCookies.com

Ross Metabolic Formula System
www.ross.com

SHS North America
www.shsna.com

Specialty Diets, Inc
www.specialtydiets.com

Taste Connections
www.tasteconnections.com

Tastee Apple Fiber
www.tasteeapple.com

The Dietary Shoppe, Inc.
www.dietaryshoppe.com

Traderjoe’s
www.traderjoes.com

Uncle Henry’s Pretzels
www.unclehenry.com

Vance’s Foods, Inc.
www.vancesfoods.com

Vitaflo Ltd.
www.vitaflousa.com