The New England Connection for PKU and Allied Disorders

Welcome to the New England Connection for PKU and Allied Disorders (NECPAD)

NECPAD is a non-profit organization that benefits and supports individuals with Phenylketonuria (PKU) and other related disorders and their families. We hope you will find the information you are looking for. Please join our mailing list to stay up-to-date on activities, information and research. Contact us with any questions or suggestions.

ATTENTION!

Just updated: What's in my meds? A list of phenylalanine amounts for commonly prescribed medications as well as over the counter medications. Click here for the list.

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NECPAD supports PKU families

Support that we receive goes back into the PKU community.

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NPKUA Info

In December, 2011, the Department of Health and Human Services (HHS) issued a “pre-rule bulletin” announcing its decision to offer “flexibility” to the states in the selection of essential health benefits. There will be no national set of essential health benefits. Each state can choose its essential health benefits

ACTION REQUIRED BY JANUARY 31, 2012

Research

What is new in PKU and Allied Disorder Research can be found here...

If you know of any projects you would like posted, please contact us.Click here...

Support

If you or someone you know has been diagnosed with PKU, you are not alone.

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