Did You Know?

Lorusso Scholarship

Meet Kelsey Prendergast,

our 2012 Lorusso Scholarship Winner!

PKU Support >

Get Support

Need Help or Encouragement? We’re here to support you!

There are often questions, concerns, frustrations and fears when dealing with a metabolic disorder. Because the New England Connection’s disorders are rare, support may be difficult to find. Please let us help! We can put you in touch with others who have had similar experiences, so that you can talk or meet one-on-one. Please remember, you are not alone in this condition.

You can speak with:

  • A medical professional, such as a doctor, nutritionist, psychologist, or social worker
  • An individual afflicted with the same metabolic condition, within a certain age group (examples: PKU adult, HCU teenager).
  • A family member living with someone who has a metabolic disorder (examples: parent, guardian, grandparent, brother, sister). For more information on support for parents, see our parent-to-parent program.